Thursday, May 19, 2011

Botox wears off

So my botox has now worn off. My next appt is June 3.

I have really started noticing the big change. My right hand is curling in very, very tight. And I now believe that the dystonia has once again progressed. My left hand is now curled and starting to twist again. As I sit here typing this my right hand is actually working better than the left. I have only use of my pointer and thumb. Thank God for that typing class in high school. Where would I be without that. Oh yeah pecking one finger at a time.

This has really made me anxious. I am so tired of it spreading. When is it going to end? Where will it hit next. All four limbs plus my tongue. Geez. I never would have thought that I would go through more. It's frustrating and scary for me. I have been totally  stressed out by this. I realize how much it impacts my moods when it acts up or spreads. I have been totally on edge because I'm anxious, scared and frustrated with it.