Calf muscle pain

I got my last botox injections on April 12. Got both arms and left leg. For the 2 nd time now, i have gotten at 2 months in, these horrible calf pains for a week. My calf muscles were so rigid and tight that I struggled to even walk. It's like having calf cramps for 4 days non stop.

Updates

I am down again sick with my daughter. I am so tired of being sick. Between colds, back pain and the dystonia, I feel like I never catch a break. So, right now, I have been researching the Whole Body Cleanse. http://www.ehow.com/how_2318240_do-total-body-cleanse.html I think it's time to get the toxins out of my system and start to eat healthier again.

I have contacted a friend who works with this type of stuff hoping to find a good homemade cleanse. I want to keep it 100% natural. Crossing my fingers that this type of thing might help. It will be hard to kick the caffeine too. Might have to start easing off it now. Don't want the migraines. Hoping this will help.

Stress

It seems like every time around Christmas, I seem to have more pain. I think this tends to be because of stress. Although I try to keep things very light around the holidays, I think I still do too much. I have a almost 5 year old daughter who now understands what Christmas is about. I am re-living some of the best times of my life through her. Christmas was an amazing time for me growing up and I want to give her everything I had.

However, because of that, I overdo it. I have been having a lot of pain lately. A lot of it stems from my lower back which has been ongoing for months. However, due to my botox wearing off, I have more pain too. And today, I have a throbbing in my right toes. This hurts but adds to my stress as this is how the dystonia first presents itself in new areas. I'm trying not to think this way, but hard not to.

Update on new meds: The Naproxin is taking the edge off the pain but not that much. Just keeps it from making it sharp and intense. Not sure if the Norco helps more than the Vicodin. I wander if the extra Acetaminophen makes a difference.

Anyway, there is my update.

Another development & pain management

Today, I went to see my GP about my blood work. Not that big of a deal. However, we talked about pain management some. I have really been hurting that past year, especially with my lower back. During our conversation, the Dr finally decided to take a x ray of my lumbar spine. And low and behold, it showed something. But what I was hoping he'd find and what it was are two different things.

What he found is more Degenerative Disc Disease ( I have it in my cervical spine C5&C6) we'll now we can add L5 & S1 to that mix. This basically means I have a compressed vertebrae which is pinching the nerves and creating lots of pain and limited mobility. Joy, joy. Then, as with my neck, I also have some bone spurs.

As if the Dystonia wasn't enough of a chronic pain issue, now we get to add this. Talk about pain management. So frustrated and mad right now. I'm so tired of all this pain. I really feel deflated right now. I can't believe how crappy my body is.

Now, I get to add Norco 7.5/325 and naproxen.

Botox on board

Well, I got my latest round of botox last Friday. Everything went fine. Got 465 units between the leg and both hands. We increased the amount within my left hand because of the addition fingers being affected.

My leg is very tender still. Those shots require a 3 inch needle which really hurts and requires multiple injection sites. Ouch!

I will post more as it starts to work.

Botox wears off

So my botox has now worn off. My next appt is June 3.

I have really started noticing the big change. My right hand is curling in very, very tight. And I now believe that the dystonia has once again progressed. My left hand is now curled and starting to twist again. As I sit here typing this my right hand is actually working better than the left. I have only use of my pointer and thumb. Thank God for that typing class in high school. Where would I be without that. Oh yeah pecking one finger at a time.

This has really made me anxious. I am so tired of it spreading. When is it going to end? Where will it hit next. All four limbs plus my tongue. Geez. I never would have thought that I would go through more. It's frustrating and scary for me. I have been totally  stressed out by this. I realize how much it impacts my moods when it acts up or spreads. I have been totally on edge because I'm anxious, scared and frustrated with it.

More leg stuff...

I just got back from a week long cruise where I had some real issues with this pain. It got much worse after I missed a step getting out of the van at the cruise terminal. It was really weird. It was like it vibrated my whole lower leg bones. It hurt like hell. Thank God I had my AFO on. As soon as I could, I had to take a percocet. OMG, it hurt so much. Then it got a little better until I missed another step on the ship. I was in tears it hurt so much. I'm so glad I made sure I had stronger meds than my usual with me on the cruise. I did this one more time - OUCH! Darn dishes on the floor. By the 3rd day, it was almost gone. I still have a little pain but nothing like that before. Geez... rough start.

 As for the amount of botox and if it worked - I gotta be honest and think it was truly worth it (except for the couple weeks of terrible pain). I have always had a horrible time getting it to relax at night in order to sleep. I took clonzapm which sometimes worked, other times NOPE. As for the dosage, I will talk to my doctor about it. I think we can go for less.
It's always an adventure.