Sunday, September 6, 2009

The latest

Sorry for the lack of updates. I have been going through some big changes. I had to start using a cane to walk. Also I recently got a disability placard for my car. Both of these items have been really hard to stomach. I'm realizing that I need to utilize these aids in order to stay healthy. I've been tiring easy and falling a lot. So far just bruising and cuts, but it could be worse and i can't do that to my 2 yeaar old. :(

So, I've had those adjustments and now realizing there is more going on. Lately, my mind has been off. I will start to talk about something and then up and forget it mid stream. Talk about frustrating. And now starting to realize that the dystonia might be moving to my right foot as well. That will make all 4 limbs. Eh!! I am going to see a movement disorder specialist next month and hope that he can shed new light on what is going on. I'm becoming more and more scared with everything going on.

Disability update - I filed the reconsideration appeal in June and just found out that it just made it to the state for the reconsideration. On Friday, the office called me for information and told me that they were just getting ready to get the updated reports from my doctors. So, 3 months after I filled the claim. I'm so frustrated by the system. If I was someone who desperately needed the money, I'd be up a creek without a paddle. It's now been 2 1/2 years since I stopped working. Anyway they are telling me December now. Frustrated.

I'm going to try to do a better job of updating now.

2 comments:

  1. Hang in there! I know it must be hard but have faith you will get through this one day at a time.

    Keep us posted!

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  2. Tina, I was just diagnosed with Generalized Dystonia too. Started in my jaw, neck and upper back. You mentioned a cane. Has anyone mentioned you bracing the disorderly foot? I am getting braces on both feet. Like you I hate the idea. It seems like we are in similar situations. Glad about the SSD. That's wonderful! Judy P

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