On Oct 13, I went to see a new doctor, Dr. David Song. Dr. Song is a Movement Specialist that Dr. Sheean sent me to see because everything was progressing. I had another thorough examine to which he determined that it was more than focal dystonia so he's now categorizing it as generalized dystonia. Kinda bummed about that. He also thinks that there is another, underlying condition going on as well. I definitely have dystonia, but it doesn't follow typical patterns. I'm one of those strange cases. Oh joy. So now, blood work, a 24 hour pee test, MRI of the brain again oh and a visit to an ophthalmologist. He's looking at Wilson's disease, but don't think it's it. I've had a couple cooper tests and liver tests before. Everything was fine there. But we'll see.
Meanwhile, he has put me on Artane. I picked up the script today and will start tonight. Not looking forward to it. I've heard there are nasty side effects with this one. Guess we'll see.
Yesterday, I went to get my botox injections with Dr. Sheean. He had mentioned that if my father was in town we I had an appointment, he'd like to check him out. My father has a tremor in his hands and he wanted to see if they are related. So, mom & dad went with me. He looked at dad and it's just a tremor. Has nothing to do with my dystonia. That was good. :) It was good to hear that he didn't give this to me. I was releaved for him. I could NEVER blame anyone for passing it to me, but I'm sure a little part of him worried about it. I would if my kid had a terrible condition.
I'll post more as I know more.
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